Programme

October 14

10:00-12:30 Panel session and short intro for afternoon workshops:
Success stories and personal element to the quality of life.
Yury Kuznetsov. Kseniya Bezuglova. Natalia Isaeva. Eugenia Malykhina. Dmitry Ignatov. Oleg Yeremin. Olesya Ovchinnikova

12:30-13:30 Lunch
13:30-15:00 Workshops:

General session №1

How to evaluate what treatment is right for your child: overview of evidence-based treatments– Mindy Scheithauer, PhD (clinical and biological psychology), BCBA-D (Board Certified Behaviour Analyst – doctoral level), ABPP (American Board of Professional Psychology Certified) Assistant Professor, Emory University School of Medicine; Psychologist, Marcus Autism Center, Children’s Healthcare of Atlanta

General session №2

NGO as a social services provider. Current legislation and practice. – Pavel Kantor, Elena Zablotskis

Workshop for parents №1

Smoothing the transition for children into a foster or adoptive family – Questions for international experts in adoption and fostering medicine from foster and adoptive parentsDana E. Johnson, MD, PhD, Professor of Paediatrics, Mary Jo Spencer, CNP, APRN, MPH, Adoption Medicine Clinic, University of Minnesota

Workshop for parents №2

I can communicate – experience of implementing AAC programmes for young children with ASD – Representatives from NHF Family Support Centre (Moscow and Nizhny Novgorod)

Workshop for professionals №3

Part 1, Teaching Before Testing: “Dynamic Assessment” for children who need AAC.Cathy Binger, Ph.D., CCC-SLP, iProfessor in the Speech and Hearing Sciences Department at the University of New Mexico

Description: Trying to figure out the best AAC solutions for a child can be challenging. When children have no prior experience with AAC, it can be hard to tell if their mistakes are due to lack of exposure or if the task is simply too hard for them. “Dynamic assessment” gives clinicians a structured way to teach new AAC skills while conducting assessments. Data collection to track the child’s progress is also stressed. Videos from evidence-based research studies will be used to demonstrate one way to use dynamic assessments, and modifications for children with different profiles will be discussed.

Workshop for professionals №4

Sexuality and developmental disabilities, Part 1Marsha Stepensky, HSC Pediatric Center, DC

12:30-13:30 Lunch
13:30-15:00 Workshops:

General session №1

The physiology of happiness – why quality of life matters– John Phillips, Professor of Neurology, Paediatrics and Orthopaedics, Medical Doctor, The Mind Research Network, University of New Mexico Health Science Center

General session №2

Quality of life of families of children with autism – Dr Liezl Schlebusch (PhD), social scientist and lecturer at the Centre for Autism Research in Africa, Division of Child and Adolescent Psychiatry at the University of Cape Town, South Africa

Workshops for parents №1

Improving quality of life for families of children with multiple disabilities – practical issues – Tula Rehab Clinic (Russia)

Workshops for parents №2

Importance of adaptive skills in quality of life for individuals with IDD and their familiesStormi White, PsyD, Marcus Autism Center, Programme Manager in the Diagnostic Services Programme, Assistant Professorship in the Division of Autism and Related Disorders, Department of Paediatrics, Emory University School of Medicine

Workshop for professionals №3

Part 2, Teaching before testing: “Dynamic assessment” for children who need AACCathy Binger, Ph.D., CCC-SLP, iProfessor in the Speech and Hearing Sciences Department at the University of New Mexico

Workshop for professionals №4

Sexuality and developmental disabilities, Part 2Marsha Stepensky, HSC Pediatric Center, DC

October 15

10:00–12:30 Panel session and short intro for afternoon workshops:

Moderators: Svyatoslav Dovbnya, John Phillips (UNM)

Quality of life of people with developmental disabilities and their families. – Dr Liezl Schlebusch (PhD), social scientist and lecturer at the Centre for Autism Research in Africa, Division of Child and Adolescent Psychiatry at the University of Cape Town, South Africa

Quality of life and considerations for service provision.Stormi White (Marcus Autism Center, Emory University)

How developmental challenges impact the quality of lifeMindy Scheithauer (Marcus Autism Center, Emory University)

Communication development and quality of lifeCathy Binger (UNM)

12:30-13:30 Lunch
13:30-15:00 Workshops:

General session №1

Sport and quality of life – Natalia Belogolovtseva, “Dream ski project”, Moscow, Alexey Gnilenkov, founder of “Hour of sledge hockey” project, Moscow, Tatiana Krupina, psychologist from Naked Heart Support Centre, Nizhny Novgorod

General session №2

Open workshop on Rights of families of children with special needs: What’s new? Problem solvingElena Zablotskis, Pavel Kantor

Workshop for parents №1

Sexuality and developmental disabilities Marsha Stepensky, HSC Pediatric Center, DC

Workshop for parents №2

Part 1: Providing communication supports for children who use AACCathy Binger, Ph.D., CCC-SLP, iProfessor in the Speech and Hearing Sciences Department at the University of New Mexico

Description: Knowing how to best support communication development for children who use AAC is not always intuitive. In this session, we will discuss some of the common behaviours adults use that do not support communication development and how to use more supportive approaches. Videos will be used to demonstrate the techniques that are discussed.

Workshop for professionals №3

Part 1, Early diagnosis and treatment for cerebral palsy: What’s new?John Phillips, Professor of Neurology, Paediatrics and Orthopaedics, Medical Doctor, The Mind Research Network, University of New Mexico Health Science Center

Workshop for professionals №4

Part 1: Assessment and treatment for children who run or wander away and put themselves in dangerMindy Scheithauer, PhD (clinical and biological psychology), BCBA-D (Board Certified Behaviour Analyst – doctoral level), ABPP (American Board of Professional Psychology Certified) Assistant Professor, Emory University School of Medicine; Psychologist, Marcus Autism Center, Children’s Healthcare of Atlanta

15:00-15:30 Coffee break
15:30-17:00 Workshops:

General session №1

Almost 18. Legal capacity and how to organise life for adults with disabilities Elena Zablotskis, Pavel Kantor

General session №2

Supporting family quality of life: considerations for providersStormi White, PsyD, Marcus Autism Center, Programme Manager in the Diagnostic Services Programme, Assistant Professorship in the Division of Autism and Related Disorders, Department of Paediatrics, Emory University School of Medicine

Workshop for parents №1

I can do it myself – self-care for young children with ASD– Representatives from NHF Family Support Centre (Moscow and Nizhny Novgorod)

Workshop for parents №2

Part 2: Providing communication supports for children who use AACCathy Binger, Ph.D., CCC-SLP, iProfessor in the Speech and Hearing Sciences Department at the University of New Mexico

Description: Knowing how to best support communication development for children who use AAC is not always intuitive. In this session, we will discuss some of the common behaviours adults use that do not support communication development and how to use more supportive approaches. Videos will be used to demonstrate the techniques that are discussed.

Workshop for professionals №3

Part 2, Early diagnosis and treatment for cerebral palsy: What’s new?John Phillips, Professor of Neurology, Paediatrics and Orthopaedics, Medical Doctor, The Mind Research Network, University of New Mexico Health Science Center

Workshop for professionals №4

Part 2: Assessment and treatment for children who run or wander away and put themselves in dangerMindy Scheithauer, PhD (clinical and biological psychology), BCBA-D (Board Certified Behaviour Analyst – doctoral level), ABPP (American Board of Professional Psychology Certified) Assistant Professor, Emory University School of Medicine; Psychologist, Marcus Autism Center, Children’s Healthcare of Atlanta

October 16

10:00–12:00 Workshops:

General session №1

Building speech, language, and communication skills with children who need AACCathy Binger, Ph.D., CCC-SLP, iProfessor in the Speech and Hearing Sciences Department at the University of New Mexico

Description: Young children develop many skills simultaneously, such as learning how to walk and talk. This is true for a child’s communication development as well: they learn how to make speech sounds at the same time they are learning new words and also how to put words together to make sentences. To fully support a child’s development, we must teach skills in all of these areas. In this session, we look at all of these areas of communication, using videos to demonstrate. Then we will take a closer look at some initial results from a current research study that focuses on using AAC to support language development. Videos will demonstrate how children who have very little functional speech can still learn to put sentences together that everyone can understand.

General session №2

Institutionalization from the global perspective and global initiatives on assessing and treating children holistically through the development of national social work systems supported by professional case managementDana E. Johnson, MD, PhD, Professor of Paediatrics, Mary Jo Spencer, CNP, APRN, MPH, Adoption Medicine Clinic, University of Minnesota, Philip Goldman (Maestral International)

Workshop for parents №1

Ask the doctor. A US perspective on cerebral palsy through the lifespanJohn Phillips, Professor of Neurology, Paediatrics and Orthopaedics, Medical Doctor, The Mind Research Network, University of New Mexico Health Science Center

Workshop for parents №2

Safety precautions for a child who runs or wanders away and put themselves in dangerMindy Scheithauer, PhD (clinical and biological psychology), BCBA-D (Board Certified Behaviour Analyst – doctoral level), ABPP (American Board of Professional Psychology Certified) Assistant Professor, Emory University School of Medicine; Psychologist, Marcus Autism Center, Children’s Healthcare of Atlanta

Workshop for professionals №3

Person-centered planning for transition to adulthoodStormi White, PsyD, Marcus Autism Center, Programme Manager in the Diagnostic Services Programme, Assistant Professorship in the Division of Autism and Related Disorders, Department of Paediatrics, Emory University School of Medicine

Workshop for professionals №4

Family-centred approach, SMART goals – Tula Rehab Clinic (Russia)

12:00–13:00 Lunch
13:00–15:30 Closing panel session:

Importance of the family – Quality of life. Impact of institutionalisation – Evidence reviewDana E. Johnson, MD, PhD, Professor of Paediatrics, International experience of family support system developmentPhilip Goldman (Maestral International)

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