Programme 2016

24 October

Opening ceremony

Plenary session

Lecture 1

An end to orphanage care: the role of the State in empowering families and children to succeed.

Georgette Mulheir, Chief Executive Officer, Lumos Foundation, UK.



Lecture 2

Every Child Deserves the Family: Importance and Challenges.

Dana Johnson, Professor, Division of Neonatology and Paediatrics, University of Minnesota, USA.

Workshop 1. Every child should live in a family environment. Topic for the day: Development of family-based care over the past five years for children from children’s homes.




Moderator: Maria Ternovskaya


Round table.
Alla Dzugaeva, Deputy Head of the Department for Social Welfare, Moscow, heads and representatives of NGOs and family placement centres, Moscow.

Replacing children’s homes with family placement centres: Successes and challenges.



Round table.

Tatiana Burmina, Deputy Director of the family placement resource centre, Department for Social Welfare, Moscow, trainers from the resource centre and specialists from centres for the promotion of family upbringing, leading experts from NGOs.
How to educate specialists from children’s homes for working with family placement centres.



Master class.
Irina Osina, regional centre for the promotion of family upbringing, Moscow, Olga Neupokoeva, independent expert, St. Petersburg.
Working with the resources of parents and professionals to prevent emotional burnout.

Workshop 2: What can NGOs do? Best practices, challenges and opportunities Topic for the day: Modern approaches to habilitation and practices for supporting children and adults with ASD




Moderator: Maria Ostrovskaya.


Anna Bitova, Director and member of the Expert Committee of the Centre for Curative Pedagogics, Moscow.
Development of practices for supporting children with ASD and their families in Russia.



Olga Nikolskaya, head of the laboratory for methods and materials relating to teaching children with emotional disorders, Institute of Special Education; Elena Baenskaya, research fellow, Moscow.
Supporting children with autism in their emotional and volitional development.

Sergey Morozov, PhD in biological sciences, Chairperson of the Dobro (“Goodness”) society to support children with autism; Svetlana Morozova, psychologist and facilitator at the Dobro society, Moscow.
25-year experience of combining behavioural and developmental approaches.



Igor Spitsberg, head of children’s rehabilitation centre Nash solnechny mir (“Our Sunny World”), Moscow.
Creation by a non-profit organisation of a comprehensive system of habilitation, rehabilitation, social adaptation and assistance for children and adults with ASD.



Galina Sharova, psychologist, head of “Open Environment” social volunteer projects at Prostranstvo radosti (“Joyous Space”), St. Petersburg.
Emotional and communication-related issues. What can NGOs do to bring people together?



Discussion.
Moderator: Maria Ostrovskaya, Director of Perspektivy (“Perspectives”) charity, St. Petersburg.
Social integration of people with ASD: Challenges relating to communication, adaptation and the creation of public facilities.



George Gunter, head of a project on employing people with autism in the IT field – DistingTec., Moscow.
International experience of employing people with autism in the IT industry and first steps towards adapting that experience in Russia in the context of a DistingTec project.

Workshop 3: Topic for the day: Master class. Early intervention programme for preschool children with ASD. Experience of using the ASSERT programme.




Moderator: Tatiana Morozova


Thomas Higbee, professor in the Faculty of Education, head of the ASSERT programme, Utah State University (USA).

Nadezhda Romanova, child and youth counsellor, Ilya Markov, psychologist, Naked Heart Family Support Centre, Nizhny Novgorod

Workshop 4: Topic for the day: Improving quality of life for children with disabilities living in foster homes and institutions.




Moderator: Svyatoslav Dovbnya


Dana Johnson, professor, Division of Neonatology and Paediatrics, University of Minnesota, USA.
Role of Diet in Adverse Outcomes in Children without families.



Mishelle Rudzinski, speech therapist, Executive Director, SPOON Foundation, Portland, USA.
Best Practices for Feeding Children with Disabilities.



Maria Rylnikova, coordinator of the Volunteer Care team, Tatiana Sigaeva, volunteer at the charitable foundation “Volunteers supporting orphans”, Moscow.
Improving quality of life for children in orphanages in Moscow through the introduction of the SAFE scale.

Workshop 5: Normalisation of the lives of people with disabilities and their families: Legal aspects. Topic for the day: From integration to normalisation.




Moderators: Anna Bitova, Roman Dimenstein


1. Anna Bitova, Director and member of the Expert Committee of the Centre for Curative Pedagogics, Moscow.

From integration to normalisation. 30 min.


2. Training for parents and specialists in using the “legal navigator”. 2.5 hours



Elena Zablotskis, legal expert at the Centre for Curative Pedagogics, Moscow. Brief introduction to the navigator.


Pavel Kantor, legal expert at the Centre for Curative Pedagogics, Moscow. Practical use of the navigator in a given situation.

25 October

Plenary session

Lecture 1

An end to orphanage care: the role of the State in empowering families and children to succeed.

Georgette Mulheir, Chief Executive Officer, Lumos Foundation, UK.



Lecture 2

Every Child Deserves the Family: Importance and Challenges.

Dana Johnson, Professor, Division of Neonatology and Paediatrics, University of Minnesota, USA.

Workshop 1: Every child should live in a family environment. Topic for the day: Development of family-based care over the past five years for children from children’s homes.




Moderator: Maria Ternovskaya


Round table.
Alla Dzugaeva, Deputy Head of the Department for Social Welfare, Moscow, heads and representatives of NGOs and family placement centres, Moscow.

Replacing children’s homes with family placement centres: Successes and challenges.



Round table.

Tatiana Burmina, Deputy Director of the family placement resource centre, Department for Social Welfare, Moscow, trainers from the resource centre and specialists from centres for the promotion of family upbringing, leading experts from NGOs.
How to educate specialists from children’s homes for working with family placement centres.



Master class.
Irina Osina, regional centre for the promotion of family upbringing, Moscow, Olga Neupokoeva, independent expert, St. Petersburg.
Working with the resources of parents and professionals to prevent emotional burnout.

Workshop 2: What can NGOs do? Best practices, challenges and opportunities Topic for the day: Modern approaches to habilitation and practices for supporting children and adults with ASD




Moderator: Maria Ostrovskaya.


Anna Bitova, Director and member of the Expert Committee of the Centre for Curative Pedagogics, Moscow.
Development of practices for supporting children with ASD and their families in Russia.



Olga Nikolskaya, head of the laboratory for methods and materials relating to teaching children with emotional disorders, Institute of Special Education; Elena Baenskaya, research fellow, Moscow.
Supporting children with autism in their emotional and volitional development.

Sergey Morozov, PhD in biological sciences, Chairperson of the Dobro (“Goodness”) society to support children with autism; Svetlana Morozova, psychologist and facilitator at the Dobro society, Moscow.
25-year experience of combining behavioural and developmental approaches.



Igor Spitsberg, head of children’s rehabilitation centre Nash solnechny mir (“Our Sunny World”), Moscow.
Creation by a non-profit organisation of a comprehensive system of habilitation, rehabilitation, social adaptation and assistance for children and adults with ASD.



Galina Sharova, psychologist, head of “Open Environment” social volunteer projects at Prostranstvo radosti (“Joyous Space”), St. Petersburg.
Emotional and communication-related issues. What can NGOs do to bring people together?



Discussion.
Moderator: Maria Ostrovskaya, Director of Perspektivy (“Perspectives”) charity, St. Petersburg.
Social integration of people with ASD: Challenges relating to communication, adaptation and the creation of public facilities.



George Gunter, head of a project on employing people with autism in the IT field – DistingTec., Moscow.
International experience of employing people with autism in the IT industry and first steps towards adapting that experience in Russia in the context of a DistingTec project.

Workshop 3: Topic for the day: Master class. Early intervention programme for preschool children with ASD. Experience of using the ASSERT programme.




Moderator: Tatiana Morozova


Thomas Higbee, professor in the Faculty of Education, head of the ASSERT programme, Utah State University (USA).

Nadezhda Romanova, child and youth counsellor, Ilya Markov, psychologist, Naked Heart Family Support Centre, Nizhny Novgorod

Workshop 4: Topic for the day: Improving quality of life for children with disabilities living in foster homes and institutions.




Moderator: Svyatoslav Dovbnya


Dana Johnson, professor, Division of Neonatology and Paediatrics, University of Minnesota, USA.
Role of Diet in Adverse Outcomes in Children without families.



Mishelle Rudzinski, speech therapist, Executive Director, SPOON Foundation, Portland, USA.
Best Practices for Feeding Children with Disabilities.



Maria Rylnikova, coordinator of the Volunteer Care team, Tatiana Sigaeva, volunteer at the charitable foundation “Volunteers supporting orphans”, Moscow.
Improving quality of life for children in orphanages in Moscow through the introduction of the SAFE scale.

Workshop 5: Normalisation of the lives of people with disabilities and their families: Legal aspects. Topic for the day: From integration to normalisation.




Moderators: Anna Bitova, Roman Dimenstein


1. Anna Bitova, Director and member of the Expert Committee of the Centre for Curative Pedagogics, Moscow.

From integration to normalisation. 30 min.


2. Training for parents and specialists in using the “legal navigator”. 2.5 hours



Elena Zablotskis, legal expert at the Centre for Curative Pedagogics, Moscow. Brief introduction to the navigator.


Pavel Kantor, legal expert at the Centre for Curative Pedagogics, Moscow. Practical use of the navigator in a given situation.

26 October

Plenary session

Lecture 1

Every Child Deserves a Family: achievements and plans for the future.

Anastasia Zalogina, President of the Naked Heart Foundation.



Lecture 2

Legislative innovations in the social sector.

Relevant issues relating to legislative changes and the implementation of legislation in the social sector.

Anna Bitova, Director and member of the Expert Committee of the Centre for Curative Pedagogics,
Elena Zablotskis, Pavel Kantor, legal experts at the Centre for Curative Pedagogics, Moscow.

Workshop 1: ОEvery child should live in a family environment. Topic for the day: Foster children in school

Moderators: Vera Lopatina, Natalia Stepina


Round table.
Moderator: Vera Lopatina.
Educational adaptation of foster children. What has happened over the past five years? Key issues and key achievements.
Participants:
School heads and teachers, foster parents.



Natalia Isaeva, primary school teacher, School No. 1429, Moscow.
Struggling to succeed at primary school. Expectations and concerns of a foster family.

Marina Kachalova, foster parent, special education teacher, resource centre to promote family upbringing, Moscow.
Experience of a foster family of a child at primary school.


Olga Anoshina, educational psychologist, Pushkin Lyceum No. 1500, Moscow.
From primary to secondary school. Early adulthood, deviant behaviour.


Marina Kantova, educational psychologist, resource centre to promote family upbringing, Moscow.
Early adulthood. “Adult child” among children.


Elena Nagirner, educational psychologist, School No. 345, Moscow.
When children do not pass their exams; how to graduate from school?


Comments by Olga Donichenko, head of Moscow central psychological, medical and pedagogical commission and Ekaterina Osetrova, senior methodologist at Moscow central psychological, medical and pedagogical commission.


Irina Kamardina, deputy director, resource centre to promote family upbringing, Moscow.
Searching for a volunteer tutor. Successful projects.


Natalia Volkova, head of medical, psychological and pedagogical support services, resource centre to promote family upbringing, Moscow.
Professional support for a schoolchild’s foster family. Presentation by a foster family.


Seminar. Inclusion in the educational environment: Dialogue in the interests of the child or conflict of interest?
Moderator: Natalia Stepina.
Participants: specialists from NGOs and schools, foster parents.

Workshop 2: What can NGOs do? Best practices, challenges and opportunities. Topic for the day: People with special needs over the age of 18: Issues relating to integration, personal fulfilment, emotional and sexual needs.

Moderator: Maria Ostrovskaya


Andrey Tsarev, director of Ya y ty (“Me and You”) organisation, Pskov.
Supported living apartments: Experience, successes and challenges.



Igor Kostin, researcher at the laboratory methods for teaching children with emotional disorders, Institute of Special Education, Moscow.
Growing up with autism: Support services.

Natalia Yevteeva, director of Khabarovsk organisation for people with disabilities Realnaya Pomosh (“Real Suport”), Khabarovsk.
Supported living and supervised employment for people with severe and complex disabilities provided by parents and authorities.



Eliso Rekhviashvili, Head of Rhea Women’s Union, Georgia.
Professional training with further employment opportunities for young adults with mental disabilities.



Daniil Tatarintsev, young adult with special needs, Moscow.
How NGOs can help us, young people with special needs, to live with dignity and cooperate with local authorities.



Elena Zlatogure, chair of the board of Yablochko (Apple) regional public organisation for the social rehabilitation of people with special needs.
Rehabilitative craft workshops as a means of achieving fulfilment and revealing the potential for people with mental disabilities.

Discussion. Sexuality and the ability of people with mental disabilities to build a family.
Moderator: Maria Ostrovskaya, St Petersburg.



Impulse message. Alla Akulova, psychologist, Anton Antipov, psychologist, centre for children with mental disabilities Prostranstvo obsheniya (“Space for communication”).
Sex education: creating an environment to stimulate feelings and enhance behaviour (based on the example of the communication and creativity club).

Workshop 3: Master class: New goals for support services for children with ASD in educational institutions – behavioural assessment, development and application of behavioural plans, social skills and self-regulation.

Moderator: Tatiana Morozova


Speakers:

Larisa Nesterova, head of support services,
Lyudmila Ivanova, Deputy Director, School No. 46 Kalinisky district, St. Petersburg, “Rehabilitation and Mercy”

Natalia Voinova, special education teacher, School No. 56, Nizhny Novgorod

Ilya Markov, psychologist, Naked Heart Family Support Centre, Nizhny Novgorod

Evgenia Burnashevskaya, Elena Potapova, Preschool No. 17, Nizhny Novgorod



Tatiana Zhuravleva, Miranda Wilson, Naked Heart Family Support Centre, Nizhny Novgorod.
Developing sensory integration programmes in schools in Nizhny Novgorod.

Workshop 4

Working with brothers and sisters of children with mental disabilities – Sibshop and PAWSS programmes.

Moderator: Svyatoslav Dovbnya


Lauriann King, psychologist, Centre for Development and Disability (CDD), University of New Mexico, USA.

Kathleen «Mo» Taylor, occupational therapist, University of New Mexico Autism Programmes at the Center for Development and Disability (CDD), USA.

Workshop 5

Normalisation of the lives of people with disabilities and their families: Legal aspects. Topic for the day: Act on the Fundamentals of Social Services for Citizens of the Russian Federation: Intentions of the legislators and challenges in practice.

Moderators: Anna Bitova, Roman Dimenstein


Elena Zablotskis, legal expert at the Centre for Curative Pedagogics, Moscow.
Act on the Fundamentals of Social Services for Citizens of the Russian Federation: intentions of the legislators. 30-45 min.



Elena Mityushkina, legal adviser at the Centre for Curative Pedagogics.
Problems faced by users of social services: Examples from real life. 15-30 min.

Anna Bitova, Director and member of the Expert Committee of the Centre for Curative Pedagogics, Moscow.
Barriers to non-state social service providers. 30 min.

Artyom Shadrin, director of Department of Innovative Development of the Ministry of Economic Development of the Russian Federation.
Social services, challenges and perspectives. 30 min.

Round table.
Regional experience implementing the social services act and ways of overcoming challenges.
Presentations by representatives from six regions and discussion.
Moderator: Anna Bitova. 2 hours.

Svetlana Guseva, chairperson at “Sodeystviye”, Tula.

Alexey Sidoruk, Diaconal center “Touch”, Orenburg.

Oksana Matveeva, Krasnoyarsk Regional Center for Curative Pedagogics, Krasnoyarsk.

Oksana Storozhuk, lawyer, member of the board of regional association for parents of children with disabilities, Vladimir.

Yuriy Kats, deputy head of board for “Equal rights” organisation, Vladimir.

Olga Pudovkina, chair of Samara regional association “Down Syndrome Community”, Samara.

27 October

Plenary session

Lecture 1

The importance of communication.

Ivan Bakaidov, St. Petersburg.



Lecture 2

Communication – a key component for inclusive education for children with special needs.

Patricia Osbourn, Director of the Autism Program, Deputy Director of the Centre for Development and Disability, University of New Mexico, USA.

Workshop 1: Every child should live in a family environment. Topic for the day: Foster families and support specialists: cooperation for the benefit of children.

Moderators: Marina Kantova, Tatiana Gubina

Tatiana Gubina, psychologist, Pro-Mama Centre, Resource Centre for Foster Families, Moscow.
New remote course for foster parents. Presentation with demonstration.



Master class. Maria Zimina, Nadezhda Podkolzina, psychologists, Resource Centre for Foster Families, Moscow.
Monitoring, support and building relationships with foster families after foster parent training as a means of preventing the return of foster children to institutions.



Master class. Marina Kantova, psychologist, Resource Centre for Foster Families, Moscow.
Preventing the return of teenage children from foster families. Working with foster families in crisis.



Presentation. Elena Bukhman, Natalia Sokolova, psychologists, Pro-Mama Centre, Moscow.
Group training for foster families

Laboratory. Irina Masalskaya, family therapist, Pro-Mama Centre, Moscow.
Training further to foster parent training: to be continued.

Workshop 2: What can NGOs do? Best practices, challenges and opportunities. Topic for the day: Parents and professionals: Cooperation with purpose

Moderator: Maria Ostrovskaya


Anna Savelyevskih, Director, Otkryty gorod (“Open City”) organisation, Ekaterinburg.
The role of parents’ associations in solving systemic problems relating to the rehabilitation and inclusion of children with ASD.

Elena Lyanguzova, head of Dorogoyu dobra (“Road of kindness”) organisation, Kirov.
Support centre for families with children with disabilities: social services for children with special needs and their parents.



Natalia Mishenina, Director, Planeta druzei (“Planet of Friends”) NGO, Omsk.
Experience launching the pilot project of day services for teenagers and young adults with disabilities in Omsk: potential expansion.



Olga Tatarintseva, chair of the board of Solnechny krug (“Sunshine”) NGO, Ivanovo.
Experience of interacting with other NGOs in projects aimed at socialising children with ASD.



Natalia Zhuzhneva, chair of Litsom k miru (“Face to the world”) NGO, Yaroslavl.
Range of social services provided by Litsom k miru.



Discussion.
Moderator: Maria Ostrovskaya.
How parents and specialists can force the integration of people with disabilities into society and the acknowledgement of modern practices by professional community.

Message.
Olga Povoroznyuk, Deputy Director of “DORIDA”, Ekaterinburg.
Parents’ initiative as a key factor in changing the social status of people with ASD. Creating a socially open environment for people with ASD.

Workshop 3: Master Class: The importance of alternative and additional communication. Assessment and development of communication in children with ASD.

Moderator: Tatiana Morozova


Alla Gorlanova, speech therapist, Dina Sirotenko, special education teacher, School No. 46, Kalinisky district, St. Petersburg, “Rehabilitation and Mercy”.

Daria Zhukova, special education teacher, Naked Heart Family Support Centre, Nizhny Novgorod.

Ilya Markov, psychologist, Naked Heart Family Support Centre, Nizhny Novgorod.

Workshop 4

Teenagers and young people with intellectual disabilities – adulthood and safe behaviour.
Moderator: Svyatoslav Dovbnya


Marsha Stepensky, special education teacher, Washington, USA.
Puberty and sexuality education in adolescents with disabilities.


Nadezhda Barovik, special education teacher, Tatiana Krupina, special education teacher, Naked Heart Family Support Centre, Nizhny Novgorod.

Workshop 5

Normalisation of the lives of people with disabilities and their families: Legal aspects. Topic for the day: parents and professionals.
Moderators: Anna Bitova, Roman Dimenstein


Anna Udyarova (St. Petersburg).
Problems relating to institutions: Psychoneurological institutions and children’s homes. 40 min.



Elena Zablotskis, lawyer, Centre for Curative Pedagogics, Moscow.
How to help children stay with their families. 40 min.
Expanding models of support for people with mental disabilities. 40 min.



Dmitry Bartenev, St. Petersburg.
Principles of the Convention on the Rights of Persons with Disabilities: Practical value and legislative reform. 40 min.



Pavel Kantor, lawyer, Centre for Curative Pedagogics, Moscow

Models of support for people with mental disabilities in different countries. 15 min.



Round table.
Ways to reform psychoneurological institutions in Russia. 1 hour 15 min.